Episodes Archive - Page 13 of 16

Episode #33: Childhood Narcolepsy

Show Notes:

Our guest during this interview is Kenya Gradnigo, a social worker and a member of the board for Project Sleep. Kenya shared information about being diagnosed with narcolepsy as a young child and some of the lessons she’s learned on how to manage life with narcolepsy.

Contact Project Sleep:

Kenya’s Instagram: @unapologetically_ken

Project Sleep Website: https://project-sleep.com

Navigating College Toolkit: https://bit.ly/narcolepsyschool

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #32: Disability Awareness Education for Children

Disability Awareness

Show Notes:

Do you have a child with a disability? Have you ever thought about how others might view a disability? Can you tell your child how to explain their disability to their friends?

Our guest for this episode is Gabriella Tiberio, a teenager who has created what may be the best representation of disabilities we’ve seen! She may be young, but she understands what it means to make disabilities a part of who someone is and not the only characteristic that people see.

Join us for this interview and find out what brought Gabriella to write a children’s book about disability awareness and how it’s being used to speak out for children in their schools and how others are using it to teach their children how to understand why some people they meet might need special accommodations at times.

Contact Gabriella:

Instagram: @gabriellatiberiooOrder Mrs Jones’s Wonderful Class(As an Amazon Associate, I may receive a commission if you make a purchase. This is a way you can help support the podcast!)

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #31: Accessible Children’s Literature – Low Vision Books for Young Children

How would you feel if you wanted to share a bedtime story with your child, but the process was too difficult? Our guest today knows just how frustrating it is to read a children’s storybook when you can’t see the words on the page. The mother of 2 young boys, Krystle Boateng took it upon herself to find a way to share a bedtime story with her two young sons, and she’s sharing her solution with the world!

Listen to this episode to hear Krystle’s story of frustration in trying to find a way to simply hold her children on her lap and read them a bedtime story. Many take this for granted, but there are parents and grandparents who would love to experience this traditional bedtime routine. However, for those with vision loss, it is a challenge to find a way to hold a book with standard size print, read the words to your child, and also allow the child to see the pictures on the page. Krystle’s frustration turned into an entrepreneurial mission and ended with her starting her own company and publishing her first book!

Contact Krystle:

Website: https://www.iabilitybooks.com/

Instagram: @inside_ability_books

How to order Bedtime, Sleep Time, Nighttime, Dreamtime, A Large Print Bedtime StoryStandard EditionReverse Contrast Edition

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #30: Narcolepsy and Sleep Disorders

Show Notes:

Our guest during this interview is Julie Flygare, the president and CEO of Project Sleep and host of the Project Sleep podcast. Julie shared information about narcolepsy and some of the exciting things that are happening through Project Sleep.

Some of the key information we discussed are the difference between type 1 narcolepsy and type 2 narcolepsy, cataplexy, current research for narcolepsy, and accommodations for students with narcolepsy.

Contact Project Sleep:

Website: https://project-sleep.com

Podcast: https://project-sleep.com/podcast/

Pediatric Narcolepsy Survey: https://project-sleep.com/wp-content/uploads/2021/10/Pediatric-Narcolepsy-Boston.pdf

Julie’s Book, Wide Awake and Dreaming: A Memoir of Narcolepsy: https://amzn.to/3wgE0H4

Genetic Marker for Narcolepsy: HLA-DBQ1*06:02More information on page 11: https://project-sleep.com/wp-content/uploads/2021/09/Science-of-Narcolepsy-Toolkit.pdf

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #29: Parenting a Child With Autism

Parenting a child with autism isn’t easy, and adding homeschooling could make it more difficult. In this episode, you’ll meet Fiorella Perkins. She is a “girl mom, homeschooling, autism advocate,” and she spends some time talking about how her daughter was diagnosed with autism just before the COVID-19 pandemic hit. Some of the challenges she faced in finding ways to help her daughter may not be the same today, but Fiorella has some creative ideas of how you can help support your child with autism.

Listen to her story and why she has become a strong voice that is helping thousands of other parents guide their children and support each other! This is the first of 2 interviews with Fiorella.

Be sure to join us for the second part of the interview to learn more about what she is doing to create a supportive environment for families who have children on the autism spectrum and how you can create the same where you live!

Contact Fiorella: @fiorella_perkins

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #28: Johnny Kincaid’s Story (part 2)

Johnny Kincaid is the child actor who plays Baby Jack on the NBC series This Is Us during the 2022 Final Season of the show. Johnny has albinism and nystagmus, and his mother, Marisol, is an advocate for visually impaired children. Marisol uses her Instagram account as a platform to teach others the importance of proper care for those with albinism and general information about different eye conditions.

This episode is the second half of an interview Marisol Kincaid gave on the Water Prairie Chronicles podcast to talk about parenting a child with albinism, Baby Jack on This Is Us, and how Johnny Kincaid got his first acting job on the NBC TV show. In this fun interview, listen in as Marisol and Tonya share their experiences in parenting a child with albinism and nystagmus and compare notes about raising their children. During the second part of the interview, Marisol shares how Johnny got started with acting and some of his experiences while filming.

Contact Marisol: @holdingsunshine on Instagram

More Information on Albinism:
https://rarediseases.org/rare-diseases/oculocutaneous-albinism/

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie
Thank you to our Super Fans: Praveen S.

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/
Artist: http://audionautix.com/

Episode #27: Parenting a Child with Albinism and Nystagmus (Part 1)

Johnny Kincaid is the child actor who plays Baby Jack on the NBC series This Is Us. Johnny has albinism and nystagmus, and his mother, Marisol, is an advocate for visually impaired children. Marisol uses her Instagram account as a platform to teach others the importance of proper care for those with albinism and general information about different eye conditions.

This is the first half of an interview Marisol Kincaid gave on the podcast to talk about parenting a child with albinism, Baby Jack on This Is Us, and how Johnny Kincaid got his first acting job on the NBC TV show, This Is Us. In this fun interview, listen in as Marisol and Tonya share their experiences in parenting a child with albinism and nystagmus and compare notes about raising their children.

Contact Marisol: @holdingsunshine on Instagram

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie
More Information on Albinism:
https://rarediseases.org/rare-diseases/oculocutaneous-albinism/

Episode #26: Celebrating 25 Episodes of the Podcast

Show Notes:

Episode #26 marks the midway point in our first season of the Water Prairie Chronicles, and it seemed appropriate to do a little reflecting on what we’ve accomplished so far this season. This episode includes a sample of the interviews we’ve provided for you as a way to let you meet our guests and sample the different topics we’ve covered. It’s been an exciting journey so far, and we can’t wait to see who else we get to introduce to you in the coming months!

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/
Artist: http://audionautix.com/

Episode #25: Diversity on the Podcast

Show Notes:

As a way of celebrating the first 25 episodes of the Water Prairie Chronicles podcast, we created this episode as a compilation of all the Speed Rounds from the guests featured in episodes 1 through 24. The podcast may feature guests who represent different types of disabilities and support for those living with disabilities, but we’ve found through the Speed Round portion of our interviews that we’re alike in many ways.

Listen through the responses to the 10 Speed Round questions and see who you can connect with and check out some of the books our guests have read recently from the list below. Tonya is an Amazon Associate and might receive a benefit if you click on the links, and any income received by using these links will go to help support the creation of the Water Prairie Chronicles podcast.

For a list of books mentioned during question 2 of the Speed Round, visit https://waterprairie.com/2022/07/22/episode25/.

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #24: Successful School Breaks for Special Needs Kids

Show Notes:

Do breaks from school cause stress and anxiety for you or your child? In this episode of the Water Prairie Chronicles, Kristin Faith Evans continues her talk with Tonya about some of the techniques she uses to keep peace in the family during breaks from school and even on the weekends. Kristin is the author of the Disability Parenting Blog (formerly the Special Needs Moms Blog), and this part of her interview was inspired by an article she posted on her blog.

See the blog post here: https://disabilityparenting.com/how-to-maintain-structure-for-children-with-disabilities-over-summer-break/

This is the second episode of a 2-part series with Kristin, and we think you’ll enjoy meeting this author, speaker, mother, wife, and mental health specialist! Be sure to check out the first episode at: https://waterprairie.com/2022/07/01/support-for-caregivers-of-special-needs-children/

Kristin would love to hear from you! Connect with her through the Disability Parenting website at disabilityparenting.com and let her know you heard about her blog on the Water Prairie Chronicles!

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/