Episode #30: Narcolepsy and Sleep Disorders
The Importance of Storytelling and the Patient Voice – the Project Sleep Podcast
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The Importance of Storytelling and the Patient Voice – the Project Sleep Podcast
Show Notes:
Our guest during this interview is Julie Flygare, the president and CEO of Project Sleep and host of the Project Sleep podcast. Julie shared information about narcolepsy and some of the exciting things that are happening through Project Sleep.
Some of the key information we discussed are the difference between type 1 narcolepsy and type 2 narcolepsy, cataplexy, current research for narcolepsy, and accommodations for students with narcolepsy.
Contact Project Sleep:
- Website: https://project-sleep.com
- Podcast: https://project-sleep.com/podcast/
- Pediatric Narcolepsy Survey: https://project-sleep.com/wp-content/uploads/2021/10/Pediatric-Narcolepsy-Boston.pdf
- Julie’s Book, Wide Awake and Dreaming: A Memoir of Narcolepsy: https://amzn.to/3wgE0H4
- Genetic Marker for Narcolepsy: HLA-DBQ1*06:02
- More information on page 11: https://project-sleep.com/wp-content/uploads/2021/09/Science-of-Narcolepsy-Toolkit.pdf
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Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/
