Empowering Voices: Raising the Next Generation of Disability Advocates

As parents of children with disabilities, we navigate a world that often requires us to be fierce advocates for our kids. But what if we could empower our children to find their own voices, to become the disability advocates they need to be? This week on the Water Prairie Chronicles, I was able to welcome back the inspiring Ally Pack-Adair, an ambassador for the Muscular Dystrophy Association (MDA), to delve into this crucial topic.

Following our conversation about Cortical Visual Impairment (CVI) in the previous episode, Ally returned to share her personal journey and the vital work she does as an MDA ambassador. More than just a title, Ally explained that being an ambassador is about being a powerful voice – an advocate for oneself and for the wider neuromuscular disease community.

Ally’s dedication shines through as she describes the multifaceted role of an MDA ambassador. From raising awareness and participating in impactful campaigns like the Shamrocks Campaign and the iconic Fill the Boot, to engaging in meaningful policy advocacy, Ally demonstrates the tangible ways one person can contribute to systemic change. Her experiences speaking with legislative assistants and participating in virtual Capitol Hill Advocacy Days underscore the power of collective voices in shaping a more inclusive future.

But perhaps the most valuable part of my conversation with Ally lies in the practical advice offered to parents. For those wondering how to cultivate self-advocacy skills in their children, Ally provides a roadmap. It starts small, with encouraging children to answer questions at doctor’s appointments, gradually building their confidence and ability to articulate their needs. Ally emphasizes the importance of scripting and role-playing, researching policies, and even writing letters to representatives – tangible actions that empower young individuals to step into their own advocacy roles.

The conversation beautifully illustrates that advocacy isn’t just for adults; it’s a vital skill that can and should be nurtured from a young age. By sharing her experiences and offering concrete tips, Ally provides hope and a practical guide for parents who want to equip their children with the tools to navigate the world with confidence and a strong voice.

Ready to hear Ally’s inspiring story and gain her invaluable advice firsthand?

Click here to watch the full interview on the Water Prairie Chronicles YouTube channel and learn how you can empower the next generation of disability advocates!

Website: https://waterprairie.com/2025/04/24/advocacy/

YouTube: https://youtu.be/kYJSdGrDvtM

Join us in the next podcast episode as Ally returns to share her experiences navigating life with multiple disabilities. You won’t want to miss it!