Seeing with the Brain: Understanding Cortical Visual Impairment (CVI)
For years, the topic of Cortical Visual Impairment (CVI) has been on my mind. As a podcast dedicated to parents of children with disabilities, I knew it was a crucial area to explore, especially as it often presents differently from ocular visual impairments. This week, I was honored to finally delve into this important subject with a truly insightful guest: Ally Pack-Adair.
I was able to have a direct and illuminating conversation with Ally, a young adult who lives with CVI every day. Ally’s willingness to share her personal experiences provides a much-needed first-hand perspective on what CVI truly is and how it impacts daily life.
Beyond the Eyes: CVI is All About the Brain
One of the key takeaways from my conversation with Ally is the fundamental difference between CVI and other forms of visual impairment. As Ally clearly explains, CVI isn’t about a problem with the eyes themselves, but rather a challenge in how the brain processes visual information. This neurological impairment, often caused by brain injury or trauma in childhood, affects the visual cortex or occipital lobe. Ally shared some of the common causes, including stroke, near-drowning, and cerebral palsy, highlighting the diverse ways CVI can manifest.
Navigating a Visually Complex World with CVI
Ally eloquently described how CVI impacts her daily life, emphasizing the concept of “visual clutter.” Imagine looking at a “Where’s Waldo” or “I Spy” book all the time – that’s a powerful analogy for how overwhelming the visual world can be for someone with CVI. Ally shed light on the fluctuating nature of her vision, the importance of contrast, and the sensory overload that can often occur.
Practical Insights and Adaptations
The conversation also dipped into practical strategies and adaptations that have been helpful for Ally throughout her life. From utilizing high-contrast materials like black and white overlays to the benefits of large print and audiobooks, Ally offered concrete examples that parents and educators can consider. She also touched on the use of technology, including accessibility settings on her phone and helpful apps.
Dispelling Misconceptions and Offering Hope
Ally directly addressed the common misconception that children outgrow CVI, emphasizing that it’s a lifelong condition. Her willingness to share her experiences as a young adult provides invaluable insight for parents navigating the journey with their children.
More Than Just Vision: A Glimpse into Daily Life
I started a new segment this week on the podcast called “A Day in the Life.” Ally offered a personal look into her morning routine and some of the biggest visual challenges she faces, such as navigating transportation and dealing with inaccessible payment machines. These candid insights help to humanize the experience of living with CVI and foster greater understanding.
Tune In and Learn More
This episode of Water Prairie is a must-listen for parents of children with visual impairments, educators, caregivers, and anyone seeking to understand the complexities of CVI. Ally’s open and honest account creates a truly enlightening and empathetic listening experience.
Don’t miss next week’s episode! Ally will be returning to Water Prairie to share about her inspiring work as an Ambassador for the Muscular Dystrophy Association. You’ll hear about her advocacy and the important initiatives she’s involved in.
Visit the Episode 122 Webpage to Listen/Watch/Read the full interview with Ally: https://waterprairie.com/2025/04/10/cortical-visual-impairment/
I encourage you to listen, learn, and share this important conversation. By increasing awareness and understanding of CVI, we can better support individuals and families navigating this unique visual experience.
What are your thoughts or experiences with CVI? Share in the comments below!
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