Sunday, May 19, 2024

Episode #27: Parenting a Child with Albinism and Nystagmus (Part 1)

Johnny Kincaid is the child actor who plays Baby Jack on the NBC series This Is Us. Johnny has albinism and nystagmus, and his mother, Marisol, is an advocate for visually impaired children. Marisol uses her Instagram account as a platform to teach others the importance of proper care for those with albinism and general information about different eye conditions. This is the first half of an interview Marisol Kincaid gave on the podcast to talk about parenting a child with albinism, Baby Jack on This Is Us, and how Johnny Kincaid got his first acting job on the NBC TV show, This Is Us. In this fun interview, listen in as Marisol and Tonya share their experiences in parenting a child with albinism and nystagmus and compare notes about raising their children. Contact Marisol: @holdingsunshine on Instagram Connect with Us: https://linktr.ee/waterprairie Support this channel: https://www.buymeacoffee.com/waterprairie More Information on Albinism: https://rarediseases.org/rare-diseases/oculocutaneous-albinism/

Marisol Kincaid, Advocate for Children with Visual Impairments
Marisol Kincaid, Advocate for Children with Visual Impairments
The Water Prairie Chronicles Podcast airs new episodes every Friday at Noon EST!

Find the full directory at waterprairie.com/listen.

Show Notes:

Johnny Kincaid is the child actor who plays Baby Jack on the NBC series This Is Us. Johnny has albinism and nystagmus, and his mother, Marisol, is an advocate for visually impaired children. Marisol uses her Instagram account as a platform to teach others the importance of proper care for those with albinism and general information about different eye conditions.

This is the first half of an interview Marisol Kincaid gave on the podcast to talk about parenting a child with albinism, Baby Jack on This Is Us, and how Johnny Kincaid got his first acting job on the NBC TV show, This Is Us. In this fun interview, listen in as Marisol and Tonya share their experiences in parenting a child with albinism and nystagmus and compare notes about raising their children.

Connect with Marisol: @holdingsunshine

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Tonya Wollum

Tonya

Tonya Wollum is a disability advocate and host of the Water Prairie Chronicles podcast which connects special needs parents with resources to help them navigate parenting a child with a disability. She is the mother of 2 college-age children who have each grown up with a disability. That experience, along with a background in education, led her to create the Water Prairie Chronicles to help share what she has learned with parents of younger children to help them know how to advocate for their children.

2 thoughts on “Episode #27: Parenting a Child with Albinism and Nystagmus (Part 1)

  • zidane

    thank you for the information

    Reply
    • You’re very welcome! Thanks for taking the time to leave a comment, and feel free to ask questions at any time!

      Reply

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