Wednesday, April 17, 2024

Episode #2 – Part 1: Growing Up With Albinism, Nystagmus and Low Vision

Advice for parents who have children with low vision.
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Show Notes:

This episode of the Water Prairie Chronicles is being posted in 2 parts so be sure to listen to both sections.

After you listen to PART 1, you can listen to Episode #2 – Part 2 HERE.

Emily speaks with Tonya about what it was like growing up with albinism, high myopia and nystagmus. She gives some great advice to parents who have children with low vision and includes the accommodations she has found to be the most helpful to her in school and in college. 

Emily played goalball, a Paralympic sport, as part of a local recreational group when she was younger, and she speaks about getting a program started at her college. Listen to her description of this fun way to help connect the low vision and blind community with the sighted community in a sport that everyone can be a part of.

Emily’s Instagram: @oemilygrace

Emily’s website:

If you want to learn more about the sport of goalball or to purchase equipment for yourself, here are some links you might find useful. Some links on this page are affiliate links. If you click on them, they may provide funds to help support Water Prairie and the costs involved in producing the podcast. Use of these links does not affect your purchase price, and you are welcome to just look at the information without making a purchase.

Article on How to Play Goalball with video links:

Goalball Supplies:

Music Used: “Your Intro” by Audionautix is licensed under a Creative Commons Attribution 4.0 license.


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Tonya Wollum


Tonya Wollum is a disability advocate and host of the Water Prairie Chronicles podcast which connects special needs parents with resources to help them navigate parenting a child with a disability. She is the mother of 2 college-age children who have each grown up with a disability. That experience, along with a background in education, led her to create the Water Prairie Chronicles to help share what she has learned with parents of younger children to help them know how to advocate for their children.

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