Episode #3 – Part 1: Growing Up With a Visual Impairment

(Leber Congenital Amaurosis)

Olivia shares tips for parents, students, and teachers when working with students with a visual impairment such as Leber Congenital Amaurosis.
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Show Notes:

In this video podcast, Tonya talks with Olivia Wilkerson about what it was like to grow up having a visual impairment caused by Leber Congenital Amaurosis, a rare genetic cause of childhood blindness. Olivia shares her memories of her younger years in school and gives tips for parents of what they might consider asking to include in their visually impaired child’s IEP at school and what they can do to help prepare their child for success in middle school and beyond

During Part 2 of this episode, Olivia speaks to teachers who work with visually impaired students about how they can help their students in the classroom and help them become advocates for their own needs. Be sure to listen to Part 2 to hear about how Olivia’s been involved with Space Camp, outdoor adventure camps, her other activities, and what she plans to do in the future.

Watch Part 2 of Episode #3: https://waterprairie.com/2022/02/11/leber-congenital-amaurosis-and-space-camp/

Olivia’s Instagram: @O_Wilkerson04

Some of the topics covered during Olivia’s interview can be explored more below:

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Music Used:

  1) “Your Intro” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/  Artist: http://audionautix.com/

Tonya Wollum


Tonya Wollum is a disability advocate and host of the Water Prairie Chronicles podcast which connects special needs parents with resources to help them navigate parenting a child with a disability. She is the mother of 2 college-age children who have each grown up with a disability. That experience, along with a background in education, led her to create the Water Prairie Chronicles to help share what she has learned with parents of younger children to help them know how to advocate for their children.

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