Thursday, March 5, 2026

nystagmus

Episode #6: The Creator of the Dancing Eyes Podcast

Show Notes:

Have you ever wondered what it’s like to have your eyes dancing all the time?

In this episode of the Water Prairie Chronicles podcast, Tonya talks with Frankie Caputo, the creator of the Dancing Eyes Podcast, about growing up with congenital nystagmus. Frankie helps answer the question, what is nystagmus by sharing what his childhood was like, how he was treated by other students, and if he has needed to make modifications in how he does everyday activities. He also shares how he created his podcast and is meeting people all around the world who live with nystagmus.

Be sure to check out his podcast at https://www.youtube.com/dancingeyespodcast!

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used:

“LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/  Artist: http://audionautix.com/

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Episode #2 – Part 1: Growing Up With Albinism, Nystagmus and Low Vision

This episode of the Water Prairie Chronicles is being posted in 2 parts so be sure to listen to both sections. Emily speaks with Tonya about what it was like growing up with albinism, high myopia and nystagmus. She gives some great advice to parents who have children with low vision and includes the accommodations she has found to be the most helpful to her in school and in college. 

Emily played goalball, a Paralympic sport, as part of a local recreational group when she was younger, and she speaks about getting a program started at her college. Listen to her description of this fun way to help connect the low vision and blind community with the sighted community in a sport that everyone can be a part of.

Emily’s Instagram: @oemilygrace

Emily’s website: emilysoriginals.com

Goalball information and supplies: https://waterprairie.com/shopping/

Music Used: “Your Intro” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/

Artist: http://audionautix.com/

Connect with us: https://linktr.ee/waterprairie

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Episode #2 – Part 2: Accommodations for Low Vision Students & Goalball for All

Show Notes:

This episode of the Water Prairie Chronicles is being posted in 2 parts so be sure to listen to both sections. Emily speaks with Tonya about what it was like growing up with albinism, high myopia and nystagmus. She gives some great advice to parents who have children with low vision and includes the accommodations she has found to be the most helpful to her in school and in college. 

Emily played goalball, a Paralympic sport, as part of a local recreational group when she was younger, and she speaks about getting a program started at her college. Listen to her description of this fun way to help connect the low vision and blind community with the sighted community in a sport that everyone can be a part of.

Emily’s Instagram: @oemilygrace

Emily’s website: emilysoriginals.com

Goalball Information: waterprairie.com/shopping

Music Used: “Your Intro” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/
Artist: http://audionautix.com/

Connect with us: https://linktr.ee/waterprairie

Read More