Episode #33: Childhood Narcolepsy
Show Notes:
Our guest during this interview is Kenya Gradnigo, a social worker and a member of the board for Project Sleep. Kenya shared information about being diagnosed with narcolepsy as a young child and some of the lessons she’s learned on how to manage life with narcolepsy.
Contact Project Sleep:
Kenya’s Instagram: @unapologetically_ken
Project Sleep Website: https://project-sleep.com
Navigating College Toolkit: https://bit.ly/narcolepsyschool
Connect with Us: https://linktr.ee/waterprairie
Support this channel: https://www.buymeacoffee.com/waterprairie
Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/
Read MoreEpisode #30: Narcolepsy and Sleep Disorders
Show Notes:
Our guest during this interview is Julie Flygare, the president and CEO of Project Sleep and host of the Project Sleep podcast. Julie shared information about narcolepsy and some of the exciting things that are happening through Project Sleep.
Some of the key information we discussed are the difference between type 1 narcolepsy and type 2 narcolepsy, cataplexy, current research for narcolepsy, and accommodations for students with narcolepsy.
Contact Project Sleep:
Website: https://project-sleep.com
Podcast: https://project-sleep.com/podcast/
Pediatric Narcolepsy Survey: https://project-sleep.com/wp-content/uploads/2021/10/Pediatric-Narcolepsy-Boston.pdf
Julie’s Book, Wide Awake and Dreaming: A Memoir of Narcolepsy: https://amzn.to/3wgE0H4
Genetic Marker for Narcolepsy: HLA-DBQ1*06:02More information on page 11: https://project-sleep.com/wp-content/uploads/2021/09/Science-of-Narcolepsy-Toolkit.pdf
Connect with Us: https://linktr.ee/waterprairie
Support this channel: https://www.buymeacoffee.com/waterprairie
Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/
Read MoreEpisode #5: Misunderstood Invisible Disabilities
In this episode, Tonya continues her conversation from Episode #4 with our son, Christopher. He tells about being misunderstood by teachers and others because of the invisible disabilities he lives with.
If you have a child who is misunderstood, you’ll enjoy hearing Christopher speak about his experiences and how he was eventually diagnosed with dysgraphia, ADHD, and narcolepsy. He shares tips for parents and kids and the accommodations he’s used to help him succeed in school.
Christopher’s story isn’t over yet. In Episode #8, we’ll post the rest of his story about playing baseball in college and how he went through a difficult injury that almost put an end to his dreams of playing baseball. Make sure you subscribe to the channel so you don’t miss it!
Read MoreDo Words Matter?
Reflections on the use of “person first language” “The difference between the almost right word and the right word is
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