disability advocate - Water Prairie Chronicles

Episode #56: Building a Supportive Community for Individuals with Down Syndrome

Show Notes:

In this episode, we take a tour of the new location for Gigi’s Playhouse Raleigh, a non-profit organization that provides support, resources, and programs for individuals with Down syndrome and their families. We speak with volunteers and staff to learn more about the impact Gigi’s Playhouse has on the Down syndrome community. Additionally, we sit down with Michelle and Matthew Schwab, advocates for Down syndrome, to discuss a range of topics related to raising a child with Down syndrome, including medical care, education, and social interactions. Join us for an informative and inspiring conversation about the beauty of Down syndrome and the importance of building a supportive community.

Connect with Matthew:

Website: https://www.matthewschwabspeaks.com/

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

MOTHERS DAY BOOK BUNDLE GIVEAWAY!

Grab your chance to win 2 signed books about Sofia Sanchez, a teen actress, model, and advocate for Down syndrome!

Go to https://waterprairie.com/giveaway for details!

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #3 – Part 2: Space Camp, Surfing, and Zip Lining!

During this part of Episode #3, Olivia speaks to teachers who work with visually impaired students about how they can help their students in the classroom and help them become advocates for their own needs. She also describes her adventures at Space Camp, outdoor adventure camps, her other activities, and what she plans to do in the future.

In Part 1 of this episode, Olivia shared her memories of her younger years in school and gave tips for parents of what they might consider asking to include in their visually impaired child’s IEP at school and what they can do to help prepare their child for success in middle school and beyond.

Watch Part 1 of Episode #3: https://waterprairie.com/2022/02/11/leber-congenital-amaurosis/

Olivia’s Instagram: @O_Wilkerson04

Some of the topics covered during Olivia’s interview can be explored more below:

Braille Challenge: https://brailleinstitute.org/braille-challenge/about

SCIVIS Space Camp: http://www.scivis.org/index.htm

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie
Music Used:

1) “Your Intro” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #3 – Part 1: Growing Up With a Visual Impairment

In this video podcast, Tonya talks with Olivia Wilkerson about what it was like to grow up having a visual impairment caused by Leber Congenital Amaurosis, a rare genetic cause of childhood blindness. Olivia shares her memories of her younger years in school and gives tips for parents of what they might consider asking to include in their visually impaired child’s IEP at school and what they can do to help prepare their child for success in middle school and beyond.

During Part 2 of this episode, Olivia speaks to teachers who work with visually impaired students about how they can help their students in the classroom and help them become advocates for their own needs. Be sure to listen to Part 2 to hear about how Olivia’s been involved with Space Camp, outdoor adventure camps, her other activities, and what she plans to do in the future.

Watch Part 2 of Episode #3: https://waterprairie.com/2022/02/11/leber-congenital-amaurosis-and-space-camp/

Olivia’s Instagram: @O_Wilkerson04

Some of the topics covered during Olivia’s interview can be explored more below:
Braille Challenge: https://brailleinstitute.org/braille-challenge/about

Connect with Us:
https://linktr.ee/waterprairie

Support this channel:
https://www.buymeacoffee.com/waterprairie

Music Used:
1) “Your Intro” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #1: What’s It All About?

Your hosts, Steve and Tonya Wollum, talk about what Water Prairie is all about, how they came up with the idea, and who they want to serve through the information they will feature on the podcast and website. Find out where the name came from and hear some of the topics coming up soon.

Music Used: “Your Intro” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/
Artist: http://audionautix.com/

Connect with us: https://linktr.ee/waterprairie

Trailer: Welcome to the Water Prairie Chronicles Podcast!

Everyone has a story to tell, and I want to help share some of the stories of parents who are raising incredible children with life challenges. You’ll hear from adults who have made the journey of being a child with a disability and find out what they’ve learned along the way. You’ll hear interviews with organizations and specialists who can help guide parents as they look for support for their child and get connected in their community.

The Water Prairie Chronicles is a series of stories that will inspire you, encourage you, and help you view the people you meet from a new perspective. Episodes are posted every Friday at noon Eastern Standard Time. We’ll add some bonus episodes from time to time with behind-the-scenes and extra content. Episodes are about 30 minutes long, and you can find us at waterprairie.com/listen. Be sure to subscribe and tune in on Friday!

Music Used: “Your Intro” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/

Artist: http://audionautix.com/

Get Connected

January 10, 2022January 19, 2022 Tonya

Do Words Matter?

Reflections on the use of “person first language” “The difference between the almost right word and the right word is