college disability accommodations Archives

Episode #35: Happy World Narcolepsy Day!

Show Notes:

September 22 is World Narcolepsy Day

Let’s join together and celebrate World Narcolepsy Day by learning a little about what narcolepsy is and how it affects those who live with it. After having the opportunity of interviewing 3 different people with narcolepsy this year, I’ve learned a lot about it and some of the challenges it presents. If you haven’t heard those interviews, I’ll list them below so you can hear the stories of Christopher, Julie, and Kenya.

If you’re on Instagram, check out our posts today and comment on some of them to show your support for those living with narcolepsy!

Narcolepsy Episodes:

Christopher’s Story: Episode #5 (Misunderstood Invisible Disabilities) & Episode #8 (Wake Up And Play Ball!)

Julie’s Story: Episode #30 (Narcolepsy and Sleep Disorders)

Kenya’s Story: Episode #33 (Childhood Narcolepsy)

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Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #33: Childhood Narcolepsy

Show Notes:

Our guest during this interview is Kenya Gradnigo, a social worker and a member of the board for Project Sleep. Kenya shared information about being diagnosed with narcolepsy as a young child and some of the lessons she’s learned on how to manage life with narcolepsy.

Contact Project Sleep:

Kenya’s Instagram: @unapologetically_ken

Project Sleep Website: https://project-sleep.com

Navigating College Toolkit: https://bit.ly/narcolepsyschool

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #30: Narcolepsy and Sleep Disorders

Show Notes:

Our guest during this interview is Julie Flygare, the president and CEO of Project Sleep and host of the Project Sleep podcast. Julie shared information about narcolepsy and some of the exciting things that are happening through Project Sleep.

Some of the key information we discussed are the difference between type 1 narcolepsy and type 2 narcolepsy, cataplexy, current research for narcolepsy, and accommodations for students with narcolepsy.

Contact Project Sleep:

Website: https://project-sleep.com

Podcast: https://project-sleep.com/podcast/

Pediatric Narcolepsy Survey: https://project-sleep.com/wp-content/uploads/2021/10/Pediatric-Narcolepsy-Boston.pdf

Julie’s Book, Wide Awake and Dreaming: A Memoir of Narcolepsy: https://amzn.to/3wgE0H4

Genetic Marker for Narcolepsy: HLA-DBQ1*06:02More information on page 11: https://project-sleep.com/wp-content/uploads/2021/09/Science-of-Narcolepsy-Toolkit.pdf

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #5: Misunderstood Invisible Disabilities

In this episode, Tonya continues her conversation from Episode #4 with our son, Christopher. He tells about being misunderstood by teachers and others because of the invisible disabilities he lives with.

If you have a child who is misunderstood, you’ll enjoy hearing Christopher speak about his experiences and how he was eventually diagnosed with dysgraphia, ADHD, and narcolepsy. He shares tips for parents and kids and the accommodations he’s used to help him succeed in school.

Christopher’s story isn’t over yet. In Episode #8, we’ll post the rest of his story about playing baseball in college and how he went through a difficult injury that almost put an end to his dreams of playing baseball. Make sure you subscribe to the channel so you don’t miss it!