Episodes - Page 5 of 10 - Water Prairie Chronicles

Episode #56: Building a Supportive Community for Individuals with Down Syndrome

Show Notes:

In this episode, we take a tour of the new location for Gigi’s Playhouse Raleigh, a non-profit organization that provides support, resources, and programs for individuals with Down syndrome and their families. We speak with volunteers and staff to learn more about the impact Gigi’s Playhouse has on the Down syndrome community. Additionally, we sit down with Michelle and Matthew Schwab, advocates for Down syndrome, to discuss a range of topics related to raising a child with Down syndrome, including medical care, education, and social interactions. Join us for an informative and inspiring conversation about the beauty of Down syndrome and the importance of building a supportive community.

Connect with Matthew:

Website: https://www.matthewschwabspeaks.com/

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

MOTHERS DAY BOOK BUNDLE GIVEAWAY!

Grab your chance to win 2 signed books about Sofia Sanchez, a teen actress, model, and advocate for Down syndrome!

Go to https://waterprairie.com/giveaway for details!

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #55: Parenting Autistic Children: Finding Gratitude in the Struggle

Show Notes:

In today’s episode, your host, Tonya Wollum, interviews Amit Chawla, a software product manager and founder of a financial planning company. Chawla has two sons, one of whom is autistic, which led him to become a certified financial planner and chartered special needs consultant.

Throughout the interview, Chawla shares his experiences of raising his son on the severe side of the autism spectrum and the struggles he faced in getting consistent treatment for him. He talks about how this experience led him to send his son to a residential school and how it gave him and his wife time to think about their future. Chawla’s wife was an attorney, but she went back to school to become an estate planning attorney, specializing in special needs and elder law.

During the interview, Chawla also discusses the unique perspective on life that the special needs community has and their ability to find gratitude in things that others may overlook. With his part-time financial planning practice, Chawla plans to continue helping families with special needs for as long as he can.

This episode is an inspiring and eye-opening conversation that sheds light on the challenges and triumphs of raising a child with special needs.

Connect with Amit:

Podcast: https://planningforspecialneeds.podbean.com

Facebook: https://www.facebook.com/MySpecialFP

Instagram: https://www.instagram.com/MySpecialFP/

LinkedIn: https://www.linkedin.com/company/my-special-financial-planning/

YouTube Channel: https://www.youtube.com/@PlanningForSpecialNeeds

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #54: What it’s Like to Raise a Medically Fragile Child with CVID

Show Notes:

In this video, we sit down with Stacey Short, a mother who has raised a medically fragile child and found herself losing her sense of self as she took on the responsibility of caring for her son with Common Variable Immune Deficiency (CVID). Stacey shares her experiences, insights, and struggles as a parent of a medically fragile child, including how she coped with the stress, uncertainty, and emotional toll of caring for a child with complex medical needs.

Stacey now uses her experiences to help other women who may be going through similar struggles. She specializes in helping women aged 35 and above who secretly hate life a little too often and have become the person they never thought they would turn into. These women are having trouble recognizing their reflections, and now find themselves yelling at, resenting, and avoiding their loved ones.

In this interview, Stacey offers valuable advice and support for parents of medically fragile children, as well as for anyone who may be struggling with their own identity and sense of self. She shares practical tips on how to maintain self-care, prioritize your own well-being, and seek out support systems that can help you through challenging times. Her story is one of resilience, compassion, and hope, and her insights will be valuable to anyone who is navigating the challenges of caregiving and parenting.

Interested in working with Stacey? Book a free discovery call and find out if her coaching program is a good fit. Be sure to mention you heard about it on the Water Prairie Chronicles for a discount!

https://calendly.com/afewshortminutes

Stacey loves to connect! Find her at:

Facebook: https://www.facebook.com/coachstaceyshort

Instagram: https://www.instagram.com/afewshortminutes_coaching_/

LinkedIn: https://www.linkedin.com/in/afewshortminutes/

TikTok: https://www.tiktok.com/@stacey_coaches

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #53: The Power of Inclusion: Insights from a Children’s Book Author and Non-Profit Founder

Show Notes:

In this episode, Tonya continues her conversation from Episode 52 with Amanda Owen, author of the Owen the Wonderer book series and founder of the non-profit, Puzzle Pieces. Owen is the main character of the children’s book series, which includes real people from Amanda’s life. The series aims to start conversations about inclusion and acceptance of individuals with disabilities, and each book includes questions for parents and teachers to help facilitate these conversations. Amanda started the series to provide a tool for parents and educators who may not know how to approach the topic of disability with children. The books are based on Amanda’s experiences as a special education teacher and the founder of a non-profit organization that advocates for individuals with disabilities.

If you missed the first part of this conversation, be sure to listen to Episode 52 to hear Amanda’s story of growing up as the sibling to a brother with a rare genetic condition. She also gives good suggestions on how parents can prepare for their special needs child’s future care. You can watch Episode 52 at https://youtu.be/sapGfxihznY.

Since recording this podcast episode, Amanda has launched another project! She created a Gratitude Journal for moms raising children with disabilities. With the help of 30 mommas from across the country, Amanda made something that she wished her mom had 41 years ago when she discovered her brother had a rare disability.

This journal is meant to not only help moms find joy in the hard, but also build a village of other moms walking similar paths. You don’t have to be alone. This journal will help you connect and find gratitude in your journey raising your child.

You can order your Gratitude Journal HERE! ➡ piecesofme.org/gratitude-journal

Amanda loves to connect! Find her at:

Website: piecesofme.org

Podcast: https://podcasts.apple.com/us/podcast/pieces-of-me/id1547078857

Facebook: https://www.facebook.com/piecesofmebyamanda

Instagram: https://www.instagram.com/piecesofmebyamanda/

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

“2 Truths and a Lie” Game:

Can you guess which statements Amanda shared were her truths and which was her lie? Post your best guess in the comments below. We’ll post the correct answer on Instagram next week so be sure to check and see if you were right.

1. Her brother was the 11th person in U.S. with his diagnosis.

2. She is 2 episodes from 100th on podcast.

3. She loves to cook and try new recipes.

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #52: Caring for Your Child with Disabilities: How to Plan for the Future

Show Notes:

In this episode of the Water Prairie Chronicles podcast, host Tonya Wollum interviews Amanda Owen, founder of the nonprofit organization Puzzle Pieces. Amanda shares her personal journey of growing up as a sibling to a brother with a rare disability and how it has impacted her life. She talks about the emotional impact of having a sibling with a disability, the challenges and joys that come with it, and the importance of emotional intelligence in processing those feelings.

As a special education teacher, Amanda felt called to do more to support people with disabilities and founded Puzzle Pieces, a nonprofit organization that has been serving the community for almost 11 years. Through her own experiences and the work of Puzzle Pieces, Amanda has become a coach for parents and siblings of individuals with disabilities, helping them navigate the emotional and practical aspects of their situations.

In this candid and heartfelt conversation, Amanda shares her perspective on growing up as a sibling to a brother with a disability and the lessons she has learned along the way. Whether you are a parent, sibling, or friend of someone with a disability, this episode will provide valuable insights and inspiration on how to support and advocate for those with disabilities.

Join us next week for the rest of Tonya’s conversation with Amanda. She talks more about her experiences, the books she’s written to help support children with disabilities and spread awareness and acceptance, and her work with her non-profit, Puzzle Pieces.

Amanda loves to connect! Find her at:

Website: piecesofme.org

Podcast: https://podcasts.apple.com/us/podcast/pieces-of-me/id1547078857

Facebook: https://www.facebook.com/piecesofmebyamanda

Instagram: https://www.instagram.com/piecesofmebyamanda/

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

“2 Truths and a Lie” Game:

1. Her brother was the 11th person in U.S. with his diagnosis.

2. She is 2 episodes from 100th on podcast.

3. She loves to cook and try new recipes.

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #51: The NC State Fair Access ABILITY Day – Inclusion for Special Needs Families

Show Notes:

Join us on a journey to the heart of the North Carolina State Fair where we witnessed something truly special. In this episode of Water Prairie Chronicles, we explore Access ABILITY Day, an event that’s all about creating a sensory-friendly event that provided inclusion for special needs families. Hear from families who took part in the event and learn about the Chill Out Zone, a special area set up to help families with sensory needs find a quiet space to relax and recharge. If you’re passionate about creating a more inclusive world, this episode is for you.

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #50: My Journey with Dyscalculia

Show Notes:

Imagine not being able to tell time, count money, or do basic math in your head. For people with dyscalculia, these everyday tasks can be a real challenge. In this video, we’re going to take a deep dive into dyscalculia and explore its causes, symptoms, and potential solutions.

Michelle Steiner joins Tonya to talk about her experiences with dyscalculia and other invisible disabilities and how she’s learned to embrace the disabilities and achieve success in life.

Connect with Michelle:

https://michellesmission.blog/

https://www.instagram.com/steiner7250/

https://www.facebook.com/profile.php?id=100013356902200

2 Truths and a Lie:

Can you guess which statements Michelle shared were her truths and which was her lie? Post your best guess in the comments below. We’ll post the correct answer on Instagram next week so be sure to check and see if you were right.

Michelle has 3 stories coming out in an anthology

Michelle is going to Canada this summer

Michelle will be growing butterflies with a kit this summer

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #49: Giving Our Sons the Gift of Sound (Part 2): Raising Deaf Children with Cochlear Implants

Show Notes:

This is the second half of my recent conversation with Felicia Aquilo, the mother of two young boys who were born profoundly deaf. She and her husband, Steve, have faced the challenge of giving their boys the gift of sound; equipping them with cochlear implants, teaching them to speak as well as sign language, and helping them appreciate music and other sounds. Join us as we hear from Felicia about her journey, her sons’ progress, and her very real hopes for their futures.

This is part 2 of Felicia’s story. Be sure to catch the first part in Episode #48!

In part 1, Felicia shared her “facts” for the game of “2 Truths and a Lie.” Can you guess which statements Felicia shared were her truths and which was her lie? Post your best guess in the comments below. We’ll post the correct answer on Instagram @water.prairie next week so be sure to check and see if you were right.

2 Truths and a Lie:

Felicia loves cooking and wanted to be on Master Chef

Felicia enjoys training and running marathons

Felicia’s known how to snow ski since she was 2-years-old

Follow Felicia on Instagram:

@feliciaaquila

Hands and Voices, a resource for families of deaf children:

Instagram: @handsandvoices

Website: www.handsandvoices.org

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

Episode #48: Giving Our Sons the Gift of Sound: A Mother’s Story of Cochlear Implants and ASL (Part 1)

Meet Felicia Aquilo, a mother of two boys who were born profoundly deaf. With loving guidance and unwavering support, Felicia and her husband embarked on an amazing journey to bring their boys the gift of sound through cochlear implants. What started out as an uphill battle is now a turning point – Felicia’s sons are thriving in their new life with sound, learning to speak, and harnessing the power of both spoken and sign language. In this exclusive interview, Felicia shares her story, how the boys are adjusting to the new technology, and how music has become a source of joy for her family.

This is part 1 of Felicia’s story. Don’t miss part 2 coming out next week!

Can you guess which statements Felicia shared were her truths and which was her lie? Post your best guess on our Instagram account https://www.instagram.com/water.prairie/. We’ll post the correct answer on Instagram a week after the part 2 episode posts so be sure to check back later to see if you were right.

2 Truths and a Lie:
1. Felicia loves cooking and wanted to be on Master Chef
2. Felicia enjoys training and running marathons
3. Felicia’s known how to snow ski since she was 2-years-old

Follow Felicia on Instagram:
https://www.instagram.com/feliciaaquila/

Hands and Voices, a resource for families of deaf children:
https://www.instagram.com/handsandvoices/
https://www.handsandvoices.org/

Episode #47: Uncovering the Mystery Behind Analytic vs Gestalt Language Processors

Meet Lenora Edwards, Chief Knowledge Officer for Better Speech – a revolutionary online speech therapy company dedicated to helping children use language effectively! Lenora has years of experience when it comes to analyzing the differences between analytic language processors and gestalt language processors. In this interview, she reveals her expertise on the matter, as well as a fascinating look into echolalia – or “echo speech.” Tune in to find out more about Lenora’s journey in providing quality speech therapy options for children and to get an insider’s perspective on these different types of language processors.

During our Season 2 episodes, we’ll be asking each guest to share “2 Truths and a Lie” about themselves as a fun way to get to know our guests. We’ve decided not to give the answer right away so our listeners can try to guess the true answers. In the comments section for this video, add your thoughts to which of Lenora’s answers were true and which was the lie. Here are the answers she gave us:
1. She had a baking business.
2. She hiked the Appalachian trail.
3. She hiked the Tour du Mont Blanc.
*** We’ll post the answer on our Instagram and Twitter account a week after this video posts so go there and check to see if you got it right!
https://twitter.com/waterprairie
https://www.instagram.com/water.prairie/

Lenora’s Contact information:
Website: https://www.betterspeech.com/
Facebook: https://www.facebook.com/yourbetterspeech/
TikTok: https://www.tiktok.com/@better.speech
Instagram: https://www.instagram.com/betterspeech/
Linked In: https://www.linkedin.com/company/better-speech/mycompany/
YouTube: https://www.youtube.com/c/BetterSpeechVideo

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/