Blog Posts for Special Needs Parenting

Episode #72: Living With Spina Bifida: A Personal Journey

Show Notes:

Have you ever heard of spina bifida? In this week’s edition of the Water Prairie Chronicles, we’re talking with Melissa Ortiz, Senior Advisor for Able Americans. She’s sharing her story of living with a disability and how she has become a voice for others facing similar challenges. Join us as we hear about Melissa’s journey and gain insight into the power of advocating for yourself and your community.

In this interview, Melissa, who has spina bifida, shares her personal journey and insights into living with the condition. The discussion covers various aspects of her life, from childhood challenges to her experiences as an adult. Melissa emphasizes the importance of understanding and educating oneself about spina bifida. She highlights that individuals who face difficulties in school can often become exceptional teachers due to their unique perspectives. Drawing parallels with historical figures like Albert Einstein and C.S. Lewis, Melissa discusses how those who perceive the world differently can excel in their fields.

Melissa delves into her professional life, detailing how spina bifida has influenced her career. She speaks about the common health issues associated with the condition, such as bladder infections, which can pose serious risks. Melissa shares her personal struggles with health challenges, and she offers advice to individuals diagnosed with spina bifida, urging them to join support groups for a sense of belonging and guidance. For parents of children with spina bifida, Melissa advises seeking advice only from those who have firsthand experience with the condition.

The conversation also touches upon workplace accommodations and the importance of ensuring accessibility. Melissa emphasizes the significance of understanding the Americans with Disabilities Act (ADA) requirements and encourages individuals to advocate for their needs. She discusses her involvement in a project to create an app that will help people find resources related to their specific disability needs within their local areas.

Overall, Melissa’s interview provides valuable insights into the challenges, triumphs, and strategies associated with living with spina bifida. Her candid discussions and advice offer guidance and support for individuals facing similar circumstances and shed light on the importance of awareness and inclusion.

Connect with Melissa:

Twitter: @dcbelleonwheels

Instagram: @dcbelleonwheels

Facebook: @melissa.d.ortiz

Email: mOrtiz@nationalcenter.org

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used:

“LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/

Episode #71: From Chaos to Control: Navigating Executive Function Challenges

Show Notes:

In this interview, Tonya discusses executive functioning skills and their impact on students with ADHD with Chris Fugelsang, an executive function coach and founder of Exceptional Path. They delve into the challenges faced by students with ADHD and the strategies that can be implemented to support them effectively.

Chris emphasizes the importance of executive functioning skills in students’ lives, as they play a crucial role in academic success and overall well-being. He explains that executive functioning skills encompass a range of abilities, such as planning, organization, time management, attention, and working memory. These skills are essential for students to navigate the demands of school and everyday life successfully.

They explore the specific challenges faced by students with ADHD, which can include difficulties with time management, prioritization, and task initiation. Chris highlights the impact of these challenges on academic performance, as well as the emotional toll they can take on students.

Chris shares valuable insights into strategies that can support students with ADHD in developing and strengthening their executive functioning skills. He emphasizes the need for structure, routines, and clear consequences to help students stay on track. Chris also advocates for individualized accommodations and support based on each student’s unique needs and strengths.

They discuss the misconceptions and misunderstandings surrounding executive functioning skills, noting that some people may mistake ADHD-related challenges for laziness or behavioral problems. Chris emphasizes the importance of understanding ADHD and providing appropriate support to help students thrive.

Throughout the interview, Chris highlights the significance of communication and collaboration between parents, teachers, and students to create an inclusive and supportive learning environment. He shares that executive function coaching can be a valuable resource for students with ADHD, providing them with the necessary tools and accountability to succeed in academics and life.

The interview concludes with Chris sharing information about his coaching services at Exceptional Path, where he offers executive function coaching for students with ADHD and executive function delays. His coaching aims to help students become more self-aware, develop executive functioning skills, and thrive academically and personally.

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Connect with Chris:

Website: http://exceptionalpath.com/

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used:

“LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/

Artist: http://audionautix.com/

Episode #70: ADHD Coach’s Secrets: Empowering Special Needs Parents for Success

Show Notes:

In this insightful interview, Tonya talks with Arianna Bradford, an expert on ADHD and founder of the “Chase the Chaos” digital summit. Arianna shares her personal experiences with ADHD, discussing the challenges she faced growing up, the impact of her diagnosis, and her journey of self-discovery. She emphasizes the importance of understanding the diverse manifestations of ADHD and highlights the misconceptions surrounding the condition.

Throughout the interview, Arianna addresses common stereotypes about ADHD, debunking the myths and explaining how ADHD affects individuals differently. She emphasizes that ADHD is not solely a childhood disorder and provides valuable insights into the specific challenges adults with ADHD may encounter.

Arianna sheds light on executive functioning and the difficulties it poses for people with ADHD, including time management, organization, and impulsivity. She discusses strategies to cope with these challenges, such as creating routines, using reminders, and employing various tools and apps.

The conversation delves into the relationship between ADHD and emotional regulation, highlighting the heightened emotional sensitivity often experienced by individuals with ADHD. Arianna shares coping mechanisms and encourages seeking professional support to manage emotions effectively.

Tonya and Arianna discuss the benefits of a supportive community for people with ADHD, acknowledging the significance of connecting with like-minded individuals who understand the challenges and triumphs associated with the condition.

Arianna further explores the link between creativity and ADHD, describing how ADHD individuals often have a strong ability to recognize patterns, which is sometimes mistaken for psychic abilities. She encourages embracing this creativity and incorporating self-care practices into daily life.

The interview concludes with Arianna sharing her upcoming “Chase the Chaos” digital summit, a platform for people with ADHD who enjoy focusing on multiple interests. The summit aims to create a community where diverse interests are celebrated, and individuals can learn from experts and share experiences.

Overall, Arianna’s expertise and personal journey provide a comprehensive understanding of ADHD, breaking down stigmas and offering practical strategies for navigating life with this unique condition.

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Connect with Arianna:

Website: https://youradhdone.com/

Instagram: https://www.instagram.com/thearibradford/

YouTube: https://www.youtube.com/@AdhDONE

Resource mentioned during this episode:

Chase the Chaos Online Summit: https://chasethechaos.thrivecart.com/ctc-summit-ticket/

Theta Wave Study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4973024/

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used:

“LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/

Artist: http://audionautix.com/

Episode #69: Unraveling the Sensory Puzzle

Show Notes:

Welcome to another enlightening episode of Water Prairie Chronicles! In this captivating interview, Tonya is joined by Occupational Therapist Kristen Jaslowich, a specialist in early intervention for children aged zero to three years. Kristen’s expertise in infant mental health and trauma-informed care makes this conversation invaluable for parents and caregivers seeking to better understand their child’s sensory development and integration.

Prepare to dive deep into the fascinating world of sensory integration in young children. Kristen sheds light on the crucial role sensory experiences play in laying the foundation for all subsequent learning and motor coordination. Get ready to explore the eight senses, including enteroception, vestibular, and proprioception, and how they shape a child’s ability to interact effectively with their environment.

Throughout the interview, Tonya and Kristen discuss common red flags that might indicate sensory challenges in children, from sensory avoidance to sensory-seeking behaviors. Kristen offers practical insights on the importance of seeking appropriate support and interventions for children with sensory integration issues.

Join us as we unravel the complexities of sensory development and its impact on a child’s overall well-being. Whether you’re a parent, caregiver, or simply curious about early childhood development, this episode promises to equip you with valuable insights and strategies to support your child’s sensory journey.

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This podcast episode provides entertainment and educational content. It is not a replacement for professional medical advice. For specific questions about your child’s sensory integration, development, or health, consult with their pediatrician or a qualified therapist. The host and guest are not liable for actions based on the information discussed. Always seek professional advice for individualized assessments and recommendations.

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Connect with Kristen:

Facebook: https://www.facebook.com/groups/647434890413466/

Instagram: https://www.instagram.com/kristengutinstinctpod/

Email: kristen@ gutinstinctpod.com

Resource mentioned during this episode:

Sensory Pyramid: https://bit.ly/sensorypyramid

Sensory Play Ideas: https://bit.ly/69sensoryplay

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used:

“LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/

Artist: http://audionautix.com/

Episode #68: Early Intervention: Why It Matters and How to Make the Most of It

Show Notes:

Today, we have a very special guest with us, Jill Urbane, The Mentor Mom, who has been working with families for nearly three decades. In this episode, we’ll be diving into the topic of early intervention for children from birth to age 3, and exploring the foundational knowledge, understanding, and skills needed to foster healthy growth, development, and learning in your child. So, whether you’re a new parent or a seasoned caregiver, sit back, relax, and get ready to learn from one of the best in the business.

Connect with Jill:

Website: https://www.thementormomblog.com

Instagram: https://www.instagram.com/thementormom/

YouTube: https://www.youtube.com/channel/UCFQsS7XZAyDX1whB9ysRdoQ

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used:

“LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/

Artist: http://audionautix.com/

Episode #67: Changing the Narrative: Shattering Stereotypes of Disability in the Workplace

Show Notes:

In this enlightening interview with Dr. Kirk Adams, we delve into the important topic of employment opportunities for individuals with disabilities and how parents can support their children in finding meaningful work. Dr. Adams provides valuable insights and addresses common concerns parents have regarding their disabled children’s employability.

He emphasizes that individuals with disabilities can indeed find employment and have successful careers. The key lies in developing disability-specific skills and creating a strong support network. Dr. Adams encourages parents to connect with organizations and associations dedicated to disability advocacy and support, which can provide guidance and resources in navigating the employment landscape.

Dr. Adams highlights that while challenges may exist, there are numerous career opportunities for individuals with disabilities. Employers are increasingly recognizing the value of inclusive workplaces and the unique strengths that disabled workers bring. He stresses the importance of dispelling misconceptions around disability employment, such as the notion that having a disability automatically hinders one’s ability to work effectively.

Throughout the interview, Dr. Adams emphasizes the importance of self-advocacy, resilience, and skill development for individuals with disabilities, highlighting that disability employment is possible with the right support and mindset.

For parents raising children with disabilities, Dr. Adams provides guidance on fostering independence, developing essential skills, and building a strong network of support. He encourages parents to connect with local chapters of disability organizations, seek mentorship opportunities, and leverage available resources to help their children navigate the path to employment.

In summary, this interview with Dr. Kirk Adams sheds light on the possibilities of employment for individuals with disabilities and provides parents with valuable insights and actionable advice. It reinforces the importance of creating inclusive work environments, dispelling misconceptions, and supporting individuals with disabilities in their journey toward meaningful and fulfilling careers.

Connect with Kirk:

Email: kirkadams000[@]gmail.com

LinkedIn: https://www.linkedin.com/in/kirkadamsphd/

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Resources mentioned during this episode:

Disability:IN – https://disabilityin.org/

Family Connect- https://familyconnect.org/

National Library Service for the Blind and Print Disabled – https://www.loc.gov/nls/

CurbCutOS – https://www.curbcutos.com/

EyeCBetter – https://eyecbetter.com/

Music Used:

“LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/

Artist: http://audionautix.com/

Episode #66: Understanding Baby ‘Colic’ and Postnatal Depletion

Show Notes:

In this captivating interview, we delve into the world of postnatal depletion and its impact on exhausted mothers with renowned expert Christiane Panesar. Join us as we explore the fascinating link between baby ‘colic’, gut health, and mental well-being. Christiane shares her wealth of knowledge, providing invaluable insights and practical strategies to help mothers conquer fatigue, support their babies’ gut health, and reclaim their own vitality. Discover the hidden connections between a mother’s well-being, her baby’s health, and the path to postnatal recovery. This episode is a must-listen for any mother looking to break free from exhaustion, embrace self-care, and thrive in all areas of life.

Please note, all information provided during this interview is for entertainment purposes only and should not replace the advice of your doctor and therapist.

Connect with Christiane:

Website: www.heart-food.com

https://www.facebook.com/postnataldepletion

https://www.instagram.com/postnataldepletionrecovery/

If people want to set up a free 60 minute Conquer Depletion Strategy Call, they can apply via my website: www.heart-food.com

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used:

“LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/

Artist: http://audionautix.com/

Episode #65: Feeding Success Starts Here: Techniques for Tackling Feeding Challenges

Show Notes:

In this episode of the Water Prairie Chronicles podcast, we dive into the world of feeding difficulties with occupational therapist, Dr. Samantha Goldman, also known as Dr. Sam. Dr. Sam shares her expertise and practical strategies for helping parents navigate the challenges of feeding their children. From overcoming picky eating to addressing sensory issues, Dr. Sam provides valuable insights on nurturing healthy eating habits and creating positive mealtimes. If you’re a parent seeking advice, parenting support, and effective mealtime strategies, this interview is a must-watch. Discover how occupational therapy techniques can empower you and your child to overcome feeding challenges. Join us as we explore the keys to enhancing feeding experiences and nurturing your child’s development. Don’t miss out on this opportunity to learn from Dr. Sam’s wisdom and gain valuable insights into childhood nutrition and mealtime stress.

Subscribe to our channel and sign up for our monthly newsletter for more expert tips and exclusive content on parenting, child development, and creating a harmonious family life. Together, let’s unlock the secrets to successful mealtimes and nourish our children’s well-being.

Please note, all information provided during this interview is for entertainment purposes only and should not replace the advice of your doctor and therapist.

Connect with Dr. Sam:

The Food Explorers Podcast: https://podcasts.apple.com/us/podcast/food-explorers-podcast/id1659053842

The Food Explorers Membership: https://www.drsamgoldman.com/food-explorers-membership

Camp Food Explorers: www.drsamgoldman.com/campfoodexplorers

FREE E-Book: “9 Easy Tips to Help Your Child Overcome Feeding Challenges” – https://theot4me.com/free-resources/picky-eating-e-book/

Website: www.theot4me.com

Social: @DrSamGoldman

Resources for parents mentioned during this episode:

Feeding Matters: https://www.feedingmatters.org/

SOS Parent course: https://sosapproachtofeeding.com/parent-workshop-when-children-wont-eat/

The Out-of-Sync Child: https://amzn.to/3pl2QFt

Sensational Kids: https://amzn.to/3NPEi12

** I am an Amazon Associate and may earn if you use the above links to Amazon products **

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used:

“LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/

Artist: http://audionautix.com/

Episode #64: Park Pioneers and the Magic of National Parks

Show Notes:

Looking for a unique and exciting way to explore the natural beauty of National Parks with your family this summer? Look no further than Park Pioneers, the new FREE program from Expeditions in Education. In this interview, we sit down with Dacia Jones, co-founder of Expeditions in Education, to learn more about the Park Pioneers program and how it can help families connect with nature and each other like never before. Whether you’re an experienced outdoor enthusiast or just looking for a fun and educational way to spend time with your loved ones, you won’t want to miss this conversation with Dacia. Join us for a fun look at how you and your family can participate in what the National Parks have to offer even if you aren’t able to go there in person!

Connect with Dacia and Expeditions in Education:

Website: http://www.expeditionsineducation.org/

Twitter: https://www.twitter.com/dacia92/

Facebook: https://www.facebook.com/ExpeditionsEd

National Parks Junior Ranger Program Books: https://spgfan.com/nps/junior-ranger-program-directory/

Purchase the Marvin & Huck books: https://amzn.to/46boYCP

** As an Amazon Associate, I may earn from your purchase, but using this link does not change your price for the books.

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used:

“LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/

Artist: http://audionautix.com/

Episode #63: Changing Lives One Scoop at a Time: An Ice Cream Shop with a Mission

Show Notes:

Maddie Rogers, the General Manager of Howdy Homemade Ice Cream in Cary, North Carolina, recently sat down with Tonya Wollum on the Water Prairie Chronicles podcast to discuss her experiences in the ice cream industry and what makes her shop unique. One of the things that sets Howdy Homemade Ice Cream apart from other shops is their commitment to employing individuals with intellectual and developmental disabilities (IDD).

Maddie explained that this commitment came about after she completed an internship at Gigi’s Playhouse, a nonprofit organization that provides educational and therapeutic programs for individuals with Down syndrome, autism, and other developmental disabilities. During her time at Gigi’s, Maddie saw firsthand the potential of individuals with IDD and how they could thrive in a work environment with the right support and training.

Maddie emphasized that the key to successfully employing individuals with IDD is to provide them with the right training and support. She explained that people with IDD often learn best through repetition and clear, simple instructions. To accommodate this, Howdy Homemade Ice Cream uses a lecture-based training approach broken up into simple steps, such as a 1, 2, 3 breakdown.

In addition to providing training, Howdy Homemade Ice Cream also provides ongoing support to its employees with IDD. This includes regular check-ins with managers, opportunities for additional training and development, and a supportive work environment where employees are encouraged to ask questions and seek help when needed.

Maddie believes that employing individuals with IDD is not only the right thing to do, but it also makes good business sense. She explained that individuals with IDD are often highly motivated and dedicated employees who take pride in their work. They also bring a unique perspective and set of skills to the workplace, which can be valuable in a customer-facing industry like ice cream.

One of the things that sets Howdy Homemade Ice Cream apart from other shops is their commitment to making all of their ice cream in-house. This allows them to offer unique flavors that can’t be found anywhere else. If you’re in the area, be sure to visit Howdy Homemade Ice Cream in Cary, NC, and tell them you heard about them on the Water Prairie Chronicles podcast!

Connect with Howdy Homemade Ice Cream:

Website: https://howdytriangle.com/

Instagram: https://www.instagram.com/howdytriangle/

TikTok: https://www.tiktok.com/@howdytriangle

Facebook: https://www.facebook.com/howdytriangle

Visit the Shop:

Howdy Homemade Ice Cream

370 South Walker Street

Suite 123

Cary, NC 27511

Connect with Us: https://linktr.ee/waterprairie

Support this channel: https://www.buymeacoffee.com/waterprairie

Music Used:

“LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/

Artist: http://audionautix.com/